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Participate in Research: FAQs

What is the goal of WeSearchTogether.org?
WeSearchTogether strives to advance mood research by:

  • providing researchers with the opportunity to connect with people living with mood disorders who are considering participating in research and
  • providing potential research participants with the opportunity to learn more about research, and to have a voice in the priorities, direction and evaluation of depression and bipolar research.

Who participates in research?
Research studies need a wide range of participants to improve care for as many people as possible. People of all ages, sexes, and races participate in research studies. Some studies may seek help from people who have multiple diagnoses, who have not yet been diagnosed or are family members of those living with mental health conditions.

Why should I participate in a study?
By participating, you are helping yourself and others like you have a better chance at improved health in the future. Additionally, if a study involves a treatment like medicine or therapy, participants receive expert diagnosis and may be able to access care more quickly or at a lower cost than traditional clinical routes. You may also receive financial compensation or learn more about your own condition.

What are some different kinds of research studies?
Some studies are observational, and want to learn about how a mental health condition is working. These studies may involve an interview, tests, physical exams, brain scans, or other ways of measuring certain things in the body. Other studies involve an intervention such as talk therapy, medication or an educational program.

Will being in a study conflict with my care?
While some research studies involve medication or other treatments, many do not.

How can I get involved in a research study?
You can learn about getting involved in mental health research by visiting WeSearchTogether.org. On this site, you can browse research study listings, read important information to consider before you participate in a study, learn about outcomes of recent research studies, hear stories from real research participants and be matched with available research studies that fit you.

Will I be paid?
It depends on the institution and the study. Some studies offer compensation while others do not. The amount participants are paid depends on the length of time and the complexity of the study activities.

How much time does participating in a study take?
It depends on the study. A survey can take 15 minutes. A brain scan or psychological tasks may take several hours. Studies about sleep or exercise may take several days or weeks. Studies that follow people over time may take months or years. You can choose which studies to participate in based on your schedule.

Will participating conflict with my busy schedule?
Researchers understand that you have other priorities such as a full time job or school. Often times, researchers will work with you to find a time that fits your schedule. If you are concerned about schedule constraints, talk with the study team. They may be able to schedule meetings on weekends or evenings, or direct you to a study with a shorter time commitment.

Who regulates research studies?
The federal government requires that all studies go through a rigorous review process with a review board made of scientists and community members. They make sure the scientists are qualified, the project is as safe as possible, participants’ privacy is protected, and that the benefits outweigh the risks for participants.

Is participating in research safe?
Each study has its own risks, but there are many protections in place to make sure studies are safe. Always remember that participating is voluntary and you have every right to ask questions to make sure the study feels safe to you. Even if you’ve already signed up or done some activities, you can change your mind and stop participating at any time during a study. Federal regulations require that all studies have oversight by an Institutional Review Board, or IRB. This group is made up of research and community members. It makes sure the study takes appropriate steps to protect all participants’ safety and privacy.

Can I stop once I start, or change my mind about being in a study?
Absolutely. All research is voluntary, meaning you can change your mind and stop participating at any time and for any reason.

I have more questions. What should I do?
We would be happy to speak with you about any questions you may have. You can also visit www.WeSearchTogether.org for more information, or contact us at Toll-Free: 866-487-0510 or Email: info@WeSearchTogether.org

 

 

 

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